Ando, Hikari and Chakrabarti, Biswajit and Angus, Robert M. and Cousins, Rosanna and Thornton, Everard and Young, Carolyn A. (2014) Experience of long-term use of non-invasive ventilation in motor neurone disease: an interpretive phenomenological analysis. BMJ Supportive & Palliative Care, 4. pp. 50-56. ISSN 2045-4368
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Abstract
Objective Although non-invasive ventilation (NIV) can promote quality of life in motor neuron disease (MND), previous studies have disregarded the impact of progression of illness. This study explored how patients’ perceptions of NIV treatment evolve over time and how this was reflected in their adherence to NIV.
Methods Five patients with MND (male=4, mean age=59 years), from a bigger cohort who were prospectively followed, had multiple post-NIV semistructured interviews, covering more than 12 months, along with ventilator interaction data. The transcribed phenomenological data were analysed using qualitative methodology.
Results Three themes emerged: experience of NIV, influence on attitudes and perceived impact of NIV on prognosis. The ventilator interaction data identified regular use of NIV by four participants who each gave positive account of their experience of NIV treatment, and irregular use by one participant who at interview revealed a negative attitude to NIV treatment and in whom MND induced feelings of hopelessness.
Conclusions This exploratory study suggests that a positive coping style, adaptation and hope are key factors for psychological well-being and better adherence to NIV. More studies are needed to determine these relationships.
| Item Type: | Article |
|---|---|
| Additional Information and Comments: | This article has been accepted for publication in BMJ Supportive and Palliative Care following peer review. The definitive copyedited, typeset version of Ando, H., Chakrabarti, B., Angus, R.M., Cousins, R., Thornton, E.W., and Young, C.A. (2014) Experience of long-term use of non-invasive ventilation in motor neurone disease: An interpretive phenomenological analysis, BMJ Supportive and Palliative Care, 4, pp.50-56. is available online at: http://spcare.bmj.com/content/4/1/50.full |
| Faculty / Department: | Faculty of Human and Digital Sciences > School of Psychology |
| Depositing User: | Anna Kirpichnikova |
| Date Deposited: | 02 Nov 2015 18:37 |
| Last Modified: | 18 Aug 2023 14:46 |
| URI: | https://hira.hope.ac.uk/id/eprint/463 |
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