Informal caregiver motivations, values, challenges and gains: A photovoice and interpretative phenomenological analysis of interrelationships

Zarzycki, Mikołaj and Seddon, Diane and Morrison, Val (2023) Informal caregiver motivations, values, challenges and gains: A photovoice and interpretative phenomenological analysis of interrelationships. Journal of Health Psychology. ISSN 1359-1053

Text (Accepted Manuscript) Informal caregiver motivations, values, challenges and gains - A photovoice and interpretative phenomenological analysis of interrelationships - Accepted Manuscript (Liverpool).docx - Accepted Version Available under License Creative Commons Attribution Non-commercial No Derivatives. Download (121kB)

Abstract

The adoption of a caregiving role in the context of illness and disability is often taken for granted. This study explores caregivers’ motivations to provide care and how these relate to values, and to the challenges and gains of caregiving. Eight semi-structured interviews were conducted with caregivers and photographs were taken by caregivers to exemplify their caregiving experiences. This photo-elicitation method complemented the use of Interpretative Phenomenological Analysis when applied to verbatim transcripts. Superordinate themes included: caregiver’s life story; significance of family; caregiving obligations; caring relationship; challenges and gains associated with caregiver motivations. Intrinsic and extrinsic motivations were less distinct in caregivers’ lived experiences than previously suggested, and were influenced by family values and specific challenges and gains of caregiving. The coexistence of different motivations and the nature of single complex motivations is discussed. The importance of caregiver assessment and support planning, and regular breaks from caregiving are highlighted.

Item Type:	Article
Additional Information and Comments:	This is the author's post peer review version of an article, the final version of which is published in the Journal of Health Psychology journal Education, Citizenship and Social Justice, published by Sage. The final version is available from: https://journals.sagepub.com/doi/10.1177/13591053221124647
Keywords:	informal caregiving, motivations, values, interpretative phenomenological analysis (IPA), photovoice, caregiving gains, caregiving challenges
Faculty / Department:	Faculty of Human and Digital Sciences > School of Psychology
Depositing User:	Mikolaj Zarzycki
Date Deposited:	03 Nov 2022 15:54
Last Modified:	24 Jan 2024 16:31
URI:	https://hira.hope.ac.uk/id/eprint/3610

Actions (login required)

View Item