Searching for the impact of participation in health and health research: Challenges and methods

Harris, Janet and Cook, Tina and Gibbs, Lisa and Salsberg, Jon and Shin, Carolynn and Souza, Nathan and Oetzel, John and Springett, Jane and Wallerstein, Nina and Wright, Michael (2018) Searching for the impact of participation in health and health research: Challenges and methods. Biomed Research International, 2018 (942745). pp. 1-12.

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Vol 2018, Article ID 9427452, 12 pages.pdf

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Internationally the interest in involving patients and the public in designing and delivering health interventions, and researching their effectiveness, is increasing. Several systematic reviews of participation in health research have recently been completed, which note a number of challenges to documenting the impact of participation. Challenges include working across stakeholders with different understandings of participation and levels of experience in reviewing; comparing heterogeneous populations and contexts; configuring findings from often thin descriptions of participation in academic papers; and dealing with different definitions of impact. This paper aims to advance methods for systematically reviewing the impact of participation in health research, drawing on recent systematic review guidance. Practical examples for dealing with issues at each stage of a review are provided based on recent experience. Recommendations for improving primary research on participation in health are offered and key points to consider during the review are summarised.

Item Type: Article
Additional Information and Comments: This article is created under Creative Commons Attribution Licence CC BY-NC. This article part of a special issue on impact. This special issue is one of two special issues on impact in PHR, the first being in Educational Action Research Vol 25, 2017, issue 4
Keywords: Participatory Health Research Impact
Faculty / Department: Faculty of Education > Disability and Education
Depositing User: Tina Cook
Date Deposited: 30 Jul 2018 12:32
Last Modified: 30 Jul 2018 12:32

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