Experience of Telehealth in People with Motor Neurone Disease using Non-Invasive Ventilation

Ando, Hikari and Ashcroft-Kelso, Helen and Halhead, Rob and Chakrabarti, Biswajit and Young, Carolyn A. and Cousins, Rosanna and Angus, Robert M. (2019) Experience of Telehealth in People with Motor Neurone Disease using Non-Invasive Ventilation. Disability and Rehabilitation: Assistive Teachnology. ISSN 1748-3107 (Accepted for Publication)

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Abstract

Introduction: Evidence is emerging that telehealth provides timely and cost-effective support for individuals with motor neurone disease (MND). However, little is known about the subjective experience of using telehealth. This study was designed to examine the experiences of using telemonitoring in patients with MND on non-invasive ventilation (NIV). Methods: Semi-structured interviews were conducted with seven patients (five males; mean age=63yrs; median illness duration=14m), who used a telemonitoring device for 24 weeks. Caregivers were present at five of the interviews; they supported communications and provided their feedback. Interviews were audio recorded and transcribed verbatim. Thematic analysis was conducted to find overarching themes. Results: Five themes were identified: Benefits of Timely Intervention, Reducing the Unnecessary, Increased Self-Awareness, Taking Initiative, and Technical Challenges. Overall, timely interventions were observed as a result of regular monitoring, contributing to both physical and psychological well-being of the participants. The patient-caregiver dyads suggested that telemonitoring could reduce costs, save time and ameliorate hassles associated with attending hospital appointments. Participants articulated that telemonitoring enabled symptom awareness and interpretation; the device also enabled the participants to raise concerns and/or requests to the healthcare professionals via the messaging system. Participants confirmed that the telemonitoring device was easy to use, despite some technical issues. Discussion: Telemonitoring was positively experienced. The findings suggest this approach is empowering and effective in promoting patients’ well-being, while potentially reducing unnecessary clinical contact.

Item Type: Article
Additional Information and Comments: This is the author's manuscript of an article that has been accepted for publication in Disability and Rehabilitation: Assistive Technology. The final version will be available from https://www.tandfonline.com/loi/iidt20
Keywords: : Telemonitoring; Telehealth; Qualitative study; Non-invasive ventilation; Motor neurone disease; Amyotrophic lateral sclerosis
Faculty / Department: Faculty of Science > Psychology
Depositing User: Rosanna Cousins
Date Deposited: 12 Sep 2019 10:31
Last Modified: 12 Sep 2019 10:31
URI: http://hira.hope.ac.uk/id/eprint/2929

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